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riathepinkie2: “ cleoselene: “ mumblingsage: “ decodethefallenmoon: “ molokoko: “ amazing ” “Just so everyone is aware, there is a bunch of misleading info being spread around re: ALS research - the “27%” figure is based on previous years’ annual...

riathepinkie2:

cleoselene:

mumblingsage:

decodethefallenmoon:

molokoko:

amazing

“Just so everyone is aware, there is a bunch of misleading info being spread around re: ALS research - the “27%” figure is based on previous years’ annual funding; furthermore, the remainder goes to improving the quality of life of those suffering from ALS. Given that the annual funding is approximately 16M, that’s just over 4M spent on decreasing their suffering. It isn’t greed, it’s a lack of money.”

Shut up already.

The ALS Association has a 4-star rating from Charity Watchdog. 

And the next time you start to complain about a charity either a) working on multiple fronts (because that’s what ALSA does—both seeking a cure and helping people suffering now) or b) daring to have administration expenses—let’s see how long you can last, much less tackle a cause, without printer paper and an internet connection. 

There is a box to check if you want your donation to go solely to research.  I know this because I donated today after my niece challenged me and tossed ice water on me.

This is a perfect example of cynical people looking for a problem.

Yeah all of this is misleading cynical bullshit. Quite frankly I’m sick to death of that attitude. 

The point of the ALS Ice Bucket Challenge

the point of pouring a shit ton of ice water over yourself is because when one suffers from amyotrophic lateral sclerosis (ALS) one of the effects the disease has is a numbness throughout the body, as well as struggling to breathe, and both these are meant to temporarily happen when doused in freezing water. It’s to raise awareness of what ALS feels like and encourage donations towards research and cures.

ftchocoholic:

on the ice bucket challenge

queenofcorgis:

nofunphillips:

my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS. 

this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.

this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.

after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.

these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.

so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.

i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”

please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.

my mom’s chapter:

http://www.alsphiladelphia.org/ 

p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.

Think about this next time you think it’s just a stupid gimick