Icon by @ThatSpookyAgent. Call me Tir or Julian. 37. He/They. Queer. Twitter: @tirlaeyn. ao3: tirlaeyn. 18+ Only. Star Trek. The X-Files. Sandman. IwtV. OMFD. Definitionless in this Strict Atmosphere.
disabilityinkidlit:
“ girldwarf:
“ Pretty much.
”
[screenshot of Facebook post by someone called Miranda. The post says: “Even if I humor anti-vaccine activists and for a second believe that vaccines cause autism in 0.01% of children they’re...

disabilityinkidlit:

girldwarf:

Pretty much.

[screenshot of Facebook post by someone called Miranda. The post says: “Even if I humor anti-vaccine activists and for a second believe that vaccines cause autism in 0.01% of children they’re administered to (spoiler alert: vaccines don’t cause autism), I am still deeply disturbed that these people are more afraid of people with disabilities than they are of fatal, painful, and endemic diseases. If cognitive disabilities are more threatening to you than children never getting to grow up because polio makes a comeback, you have priorities to reevaluate my friend. Shame on you for brainwashing mothers an families into believing that autism is the absolute worst thing that can happen to a person.]

Someone walks over to our step to say hello. She bends at the waist, looming over Brooke.

Brooke doesn’t look up. She doesn’t stop stripping her stick.

Dig. Pull. Dig. Pull.

Our visitor reaches out a hand and cups it below Brooke’s chin.

I freeze. Oh God.

She uses the hand to pull Brooke’s head up by the jaw.

A thin line of panic starts somewhere deep. I know that Brooke is going to scream. 5,4,3,2 …

She does scream, but not in the way that I expect.

“I HATE BEING TOUCHED!!” she shouts.

I am flabbergasted.

Words. Self-awareness. Communication. Self-advocacy.

I know the sentence will need to be reformatted. But I am drenched in pride.

I turn to Brooke. “Great job telling us how you feel, Brooke. Really great job.” I hope that my words send a message to both of them. I stand with my girl.

Our visitor is undaunted.

“I just want to see that beautiful face,” she says. “Lift up for me.”

I am stymied by etiquette. By deference to our host. By generational difference. By convention.

Brooke is not.

She lifts her head as instructed. And growls.

This has probably been posted before, but this knocks me for a loop - a blogger and her autistic daughter had the opportunity to meet Suzanne Wright of Autism Speaks, and this is how one of the noisiest voice in the autism community treated her daughter.

What knocks me for a loop isn’t so much Wright’s awful behavior. It’s the unbelievable strength and self-advocacy that the blogger Jess’s daughter, Brooke, shows when someone violates her personal space. It’s her mother backing her up for making sure someone knows that they are not permitted to touch her unless she says it’s okay. Honestly, it’s heartening. I hope Wright felt real fucking uncomfortable. She should.

(via chantrykomori) YOU GO, GIRL!!!!! (via primadraggle)

foundbysara:

“He has autism. I’m really surprised he was playing with you.”

This happens sometimes at work, and I’m never sure how to react. A parent (or other adult) will come up to me after I’ve been playing with their child, and point out that the child’s current behavior is really unusual for them.

Sometimes it’s young kids who just seem overwhelmed by their surroundings, and we’ll just sit together for a little bit. I’ll talk about things—their shoes, the weather, the character on their shirt—for little while, and then listen when they start talking. If they start talking—often, they don’t,and that’s okay.

Sometimes it’s a copycat game. They’ll hide from me, and I’ll hide from them. They peek out, and I peek out. They put their hands up, and I put my hands up. When they realize that everything I do is copying them, their actions get more intentional, silly, fun.

Last week there was a young man in our new Thomas the Tank Engine gallery. I talked with him for a minute, and it was immediately clear that he a.) loved trains, and b.) hated eye contact. So I stopped trying to make eye contact, and we played in parallel, not facing each other, but talking about trains, Thomas, the toys he had at home.

And it happened again, the grown-up coming up afterwards and confessing “He’s autistic, he doesn’t usually talk to people.”

And I smiled and said, “Well, it seems like he’s having fun,” because I didn’t know what else to say. And it did seem that way, and that’s great.

But I never know how to react when parents say that to me. They always seem pleased, grateful, even, and I guess they must mean it as a compliment. And if I made their day brighter, and (more importantly) their child’s day brighter, good. That’s wonderful, and it’s what I try to do with everyone who comes to the museum.

But it’s also weird, because—it’s what I do with everyone who comes to the museum. I’m not a therapist, I’m not a specialist, I’m not some mysterious Autism Whisperer. I just try to connect with kids and make their days better. I don’t have special tactics for “dealing with” autistic kids. I don’t even work in an environment where autistic kids are identified as such, except by their parents, after the fact.

So I’m literally treating these children as I would any other human: with cheer, and with kindness, with gentleness, silliness, understanding.

So when the adult says to me, “he never plays this way!” I worry.

Because I am not an extraordinary person. I am not doing anything special—just paying attention to the child, offering lighthearted interaction, responding to their needs and desires as best as I understand them. It’s how I approach every child I work with—hell, it’s how I try to approach every person I know.

So when I hear, “He never plays like this!”

I don’t really know what to say. But I hope with all my heart that its not because he’s never treated like this.

neurowonderful:

Wouldn’t it be awesome if there was a pro-Neurodiversity, pro-Autism documentary starring actual autistic advocates?

Wouldn’t it be amazing if this educational film exposed the controversy of Autism Speaks, while at the same time covering topics like the Judge Rotenberg Center and the horrifying society-sanctioned pattern of disabled people being murdered by their caregivers?

Wouldn’t the icing on the cake be an exploration of the Autism Acceptance/Neurodiversity movement through the eyes of autistic people, featuring interviews with Ari Ne’eman of The Autistic Self Advocacy Network, Landon Bryce of thAutcast, artist/author Robyn Steward and autism activist Zoe Gross?

This film exists! The documentary is Citizen Autistic, Produced by William Davenport, and it needs help. William Davenport is currently trying to raise enough money to be able to do a screening tour and bring this incredibly important film. They have an indiegogo campaign here, and their goal is to raise $5000.

This is a big opportunity for the a/Autistic community to spread a message of truth. As William Davenport said, “After screening the film, people have remarked to me, ‘I didn’t even know that adults have autism’.” Right now the loudest voices are the voices coming from Autism Speaks and other pro-cure and anti-acceptance organizations led and directed by non-autistics. But films like Citizen Autistic can be a part of changing that!

Please check out their indiegogo campaign here and consider donating, and please help spread the word! Citizen Autistic also has a facebook page here. To see more excerpts from the film you can see William Davenport’s vimeo page here.

loryisunabletosupinate:

allismshutsup:

Imagine an organization called Homosexuality Speaks run entirely by straight people, many with gay children.

They discuss the harrowing epidemic of being gay, shouting “1 in 10!“ to the sky as a dreadful cry.

They spend their days wondering how to eradicate such an “abnormal” and “inappropriate” condition.

"How sad, they’ll never be able to fit in to enjoy the traditional dating structure like everyone else!” they say.

They research what makes folks gay in the first place…but only to abort gay people and wipe out the condition.

In fact, they don’t even want to say “gay people.” They’re people with homosexuality. Emphasize the person first, they say! Don’t define them by their negative condition; look beyond that! After all, the folks at Homosexuality Speaks would love their children if only they were straight.

And they’re not alone in this anti-gay pro-extermination dogma. Dozens of huge corporations support and sponsor them. Terrified yet?

If Homosexuality Speaks would strike you as a hate group, you should feel the same way about Autism $peaks.

don’t forget the ads that paint the parents as the victims of their gay child

nomorepuzzleprofits:

Hello, AndrewGarfieldDaily.

As an autistic person, I feel the need to help inform the public, especially on this important Autistic Pride Day.

Please, please DO NOT SUPPORT AUTISM SPEAKS.

Autism Speaks hates autistic people. Autistic people have been treated horribly by this corporation. They have done many, many really shady things that should be brought to public attention, yet they are often seen as the “face” of autism because they are so large. This is a LIE. Autistic people DO NOT want to be represented by Autism Speaks. We do not support Autism Speaks. We do not want Autism Speaks to continually pretend to “help” us while raking in massive corporate profits, that we, disabled people, will never see.

So What’s SO Bad About Autism Speaks?

  •  Autism Speaks does not have a single autistic member on their board.
  • Autism Speaks only spends 3% of their budget on “family services”.

  • Much of Autism Speaks’ money goes toward research, and much of that research centers on finding a way to eliminate autism, and thus, autistics (which will likely be done through a prenatal test, in the same way that the Down’s Syndrome test is conducted).

  • Autism Speaks produces advertisements, small films, etc. about what a burden autistic people are to society.

  • Autism Speaks was responsible for “Autism Every Day”, which featured a member of their board talking about contemplating murder-suicide of her daughter in front of her daughter.  This has now be removed from Autism Speaks’ Youtube channel.

  • Autism Speaks is responsible for the atrocity known as “I am Autism”, a short film produced by the Academy Award Winning Alfonso Cuaron, who also directed the 3rd Harry Potter movie (yes, really) and features an ominous voice saying things like “I am autism…I know where you live…I work faster than pediatric AIDS, cancer, and diabetes combined…I will make sure your marriage fails.”

  • This woman’s job offer was rescinded after she asked Autism Speaks for accommodations in caring for her autistic son.  They refused, and she made necessary accommodations for childcare, but they withdrew her offer anyways.

  • Autism Speaks shared the news of Google removing hate speech regarding autistics from Google’s autofill feature, completely erasing any mention of autistic people’s flashblogs having anything to do with the change.  It was only after a member of the autism community (and not a parent, but an autistic person themselves) spoke with a reporter about the flashblog and a statement was released to the media that Google decided to make this change.

  • Autism Speaks highlighted AAC use, while erasing those those who actually use AAC devices to communicate.  The focus was on the caretakers, not on the autistic people themselves. (The attached link has a link to a rebuttal by a nonspeaking autistic person, Amy Sequenzia).

  • Autism Speaks has violated copyright and has profited off an autistic advocate’s writing for three years.

    Is that not enough? Here, have way more of Autism Speaks dirty laundry that they don’t want you to know about.

Do not donate to Autism Speaks. Do not support them. Educate yourself on why they are so horrible. I like Emma Stone and I like Andrew Garfield, but they are obviously unaware of the horrors that go on behind closed curtains when it comes to Autism Speaks.

Please spread the word and listen to autistic people, not Autism Speaks!